Luckily she still has her cute sense of humor. She is determined to have it her way. Here is an example. She is supposed to wear heel cups in her shoes and shoes all the time, no bare feet, no flips ect. I tell her go get your shoes on you have to have your feet in the heel cups. And she came down stairs like this. Stinker!
After seeing more Dr.s Avary was diagnosed with Severs Disease.
There are varying degrees of it and unfortunately she has a pretty severe case. She has been in a lot of pain and can't do much of any of the things she loves so much to do. Like run and play and jump and climb and swim and bike and roller blade and ect. She has always been so athletic and active and coordinated and my little tough girl physically and my sweet girl emotionally. This has been so very hard for her.
Contrary to some of the things you find on the internet the Dr. has explained to me, more than once, that this will continue to be a problem and very painful for her until her growth plate fuses around the age of twelve. He said this is a very frustrating disease for her, me and him because you can't just fix it. And it is very painful. I wish I could fix it.
It has been so hard for me to watch her hurt and lose so much of her ability. On some days she does a swim lesson and then can't walk to the car, she can't even get her knees to bend. Sometimes she can't walk down the stairs. Sometimes she can't even walk at all with out tons of pain and she just sits and watches a movie. She has been sad. And so have I. Hearing "oh she'll be fine" from people is irritating to me. Yes, she will in about six years. And they haven't seen her lose her identity and she doesn't understand. She is so much more than the physical things, but that is what she LOVED to do. You get left behind and miss out. She just keeps pushing through, I gotta give her that. She is one tough little girl. She does as much as her little feet will let her and then deals with the pain.
She thinks she can outsmart me and the Dr.s. The Dr's keep having talks with her about toning it down and what she cannot do and she just looks at them in defiance and they see it and then look at me. I am supposed to put her back in her boots when the pain gets to where she can't walk properly to force them to rest, but when they tell her and she gives them that look and they look at me I'm thinking you try and force this girl to put those boots on. She is stubborn and strong. She hates those things even when they relieve the pain.
Right now we are doing all of the things that can be done for it, but it is still pretty bad. If it hasn't improved the Dr's are planning on casting both feet at the end of July. My goal is to keep her out of the cast. No one wants to start a new school in a wheel chair with two cast on, especially Avary.
